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by Cori
(Canada)
Hello
by cori
(canada)
Just realized I should have added some personal info
51 yr old female
10 year history of Neurosarcoidosis
10 years of long term high dose steroids (many years over 40 - 60 mgs per day)
last 3 years at 10 mg prednisone
5 years of severe "peripheral neuropathy"
steroid induced diabetes for 5 years
about a year of trying to get someone to look into the fact that I could feel and HEAR my ankles grinding and clicking ~ everyone said not to worry
I kept asking if i was doing any damage by working out, and walking on these scraping feet ....every doctor said no problem, just ignore the noise (!!!!)
Now I am sure that this was the beginning of this terrible problem ....what do you think ????
Cori from Canada
Hi Cori,
Well....you seem to be under the care of a doctor that understands the problem so you have put yourself in the best position possible. The fact that you have been on so much prednisone, in the long run, probably does not help your prognosis, but the reality is I do not think anyone can predict with any certainty how this will all play out.
Keep a positive outlook, follow your doctor's advice, be your own advocate and keep researching your problem; everyday new ideas come forward in medicine and you may come across an advancement for Charcot foot before your doctor. Hopefully, the condition will run its course and you will escape with minimal damage.
Marc Mitnick DPM
Comments for followup about charcot foot
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